{"id":502865,"date":"2021-08-24T17:59:52","date_gmt":"2021-08-24T17:59:52","guid":{"rendered":"https:\/\/glaad.logalt.net\/publication\/2021-2\/"},"modified":"2024-05-16T15:09:29","modified_gmt":"2024-05-16T19:09:29","slug":"2021-2","status":"publish","type":"publication","link":"https:\/\/glaad.org\/endhivstigma\/2021\/","title":{"rendered":"2021 State of HIV Stigma Study"},"content":{"rendered":"

Measuring American attitudes toward HIV and the impact stigma has on people living with HIV<\/strong><\/h3>\n

The HIV epidemic won\u2019t end until we tackle the effects of stigma. We partnered with Gilead Sciences and Southern AIDS Coalition to better understand how much stigma still exists and its impact on those living with HIV. Despite making significant progress towards ending the epidemic, a majority of the public feels uncomfortable, uninformed, and concerned about HIV and people living with it. The State of HIV Stigma survey confirms that stigma and misinformation around HIV is widespread, and there is much work to be done to educate the public before we can end the epidemic once and for all.<\/p>\n

Foreword:<\/h3>\n

The GLAAD 2021 State of HIV Stigma Study paints the picture of\u00a0the challenges we must overcome to end HIV-related stigma. The\u00a0findings reflect a vast lack of understanding of HIV and how it can be\u00a0prevented, as well as significant discomfort and unfounded fear about\u00a0people living with HIV. The Deep South has the highest rates of HIV\u00a0diagnosis, yet the study reveals that the U.S. South also has some of\u00a0the highest discomfort levels pertaining to the virus. This is a perfect\u00a0storm for the\u00a0perpetuation of misinformation.\u00a0Read More<\/strong><\/a><\/p>\n

Introduction:<\/h3>\n

The 2021 State of HIV Stigma Study is a national survey in\u00a0partnership with the Gilead COMPASS Initiative measuring\u00a0American attitudes toward HIV and people living with HIV. In this\u00a0report, we also systematically review the history of HIV stigma
\nin the media to document the current state of research and offer\u00a0recommendations for media to increase and improve coverage of\u00a0HIV and people living with HIV. This report also offers strategies\u00a0from leaders in HIV education and treatment for defeating stigma in\u00a0all areas of society.\u00a0\u00a0Read More<\/strong><\/a><\/p>\n

Read Full Report<\/a><\/strong><\/p>\n

GLAAD 2021 State of HIV Stigma Study<\/h3>\n

The 2021 State of HIV Stigma Study was conducted through\u00a0an online survey between January 14, 2021 to January 29,\u00a02021, among a sample of 2517 U.S. adults, 18 years or over.<\/p>\n

The findings paint a troubling picture of the general US\u00a0population\u2019s overall attitude and knowledge around HIV,\u00a0particularly levels of accurate knowledge around HIV\u00a0transmission and stigma still present towards People Living with HIV.<\/p>\n

Americans still don\u2019t know much about HIV<\/strong><\/p>\n

The study found less than half of Americans, 48%, feel knowledgeable about HIV, down three points from a year ago.<\/p>\n

Discomfort around people living with HIV<\/strong><\/p>\n

There is still unfounded fear about people living with HIV, even though those receiving proper medical treatment cannot transmit HIV. The study asked about feeling discomfort in interactions with the following people with HIV. 53% of non-LGBTQ people surveyed noted they would be uncomfortable interacting with a medical professional who has HIV, 44% uncomfortable around a hair stylist or barber living with HIV, 35% with a teacher living with HIV.<\/p>\n

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Regional differences<\/strong><\/p>\n

Discomfort levels around people living with HIV are higher in the Midwest and highest in the U.S. South.<\/p>\n

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Media representation<\/strong><\/p>\n

On a more positive note, 56% of non-LGBTQ respondents noted they are seeing more stories about people living with HIV in the media, up four points from 2020.<\/p>\n

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Understanding HIV<\/strong><\/p>\n

Only 64% of those surveyed agree with the true statement that medications exist to protect someone from contracting HIV; just 42% agree with the true statement that people living with HIV who are on proper medications cannot transmit the virus.<\/p>\n

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Methodology\u00a0<\/strong><\/p>\n

The 2021 State of HIV Stigma Study was conducted through an online survey between January 14, 2021 to January 29, 2021, among a sample of 2517 U.S. adults, 18 years or over. The sample was sourced and aggregated through CINT, the world\u2019s largest consumer network for digital survey-based research with access to 144 million panel members globally, was consistent with the inaugural 2020 sample survey.<\/p>\n

Strategies to Combat HIV Stigma:<\/h3>\n

The Gilead COMPASS Initiative\u00ae is working to address the HIV\/AIDS epidemic in the Southern U.S. by collaborating with local community organizations to meet the needs of people living with and impacted by HIV\/AIDS. The following COMPASS leaders\u00a0 are calling for specific actions to reduce stigma.<\/p>\n

1. Provide tangible and accessible information to counter misinformation<\/strong><\/p>\n

\u201cPeople fear what they don\u2019t know,\u201d states Kia Colbert, Director for the\u00a0COMPASS Coordinating Center at Rollins School of Public Health at Emory University<\/a>. \u201cStigma is rooted in fear, thus for every accurate piece of information and knowledge that is available, there is an equal amount of misconceptions based on preconceived notions about the virus.\u201d<\/p>\n

2. Build trust between healthcare provider and patients<\/strong><\/p>\n

\u201cThe doctor\/patient relationship – like all relationships – takes work,\u201d notes Ian L. Haddock, Founder and Executive Director of\u00a0The Normal Anomaly Initiative<\/a>. \u201cEach person comes with a wealth of knowledge – one with medical experience and the other with lived experience. Physicians often don\u2019t recognize the patient’s expertise.\u201d<\/p>\n

3. Confront fear with facts and honest conversation<\/strong><\/p>\n

\u201cPeople still see HIV and AIDS as a death sentence,\u201d says Tatiana Williams, Co-Founder & Executive Director of Trans Inclusive Group<\/a>. \u201c We have to normalize the conversation surrounding HIV, and how HIV impacts the entire community, not just certain communities and\/or sub-groups.\u201d<\/p>\n

4. Apply lessons from COVID-19 response<\/strong><\/strong><\/p>\n

\u201cThe urgency of addressing COVID-19 revealed our ability to swiftly build infrastructure for a response that is comprehensive and accessible,\u201d shares Dafina Ward, Executive Director of Southern AIDS Coalition<\/a>. \u201cCOVID-19 has provided an opportunity for dialogue regarding transmission of viruses, vaccines research and more, while making more people receptive to the conversation. COVID-19 has also demonstrated the layered impact of diagnosis on all aspects of a person\u2019s life, and the inequities that must be addressed to ensure that every person impacted receives the same level of care.\u201d<\/p>\n

5. Consider internal and external factors<\/strong><\/p>\n

\u201cIt\u2019s important to remember that stigma is not an issue that only manifests itself externally,\u201d says Sandra C. Melvin, Chief Executive Officer of the Institute for the Advancement of Minority Health<\/a>. \u201cWe have to think about the ways it impacts one\u2019s mental health and their self-esteem. We must remember, even with all the COVID-19 conversations, that discrimination and human rights violations are major factors that drive HIV stigma in today\u2019s society.\u201d<\/p>\n

A Study of HIV Stigma in the Media:<\/h3>\n

Musical artists have historically led the way in raising awareness about HIV and accelerating acceptance of people living with HIV. Pop culture icons like Elton John, Madonna, Sheryl Lee Ralph, Naomi Campbell, Magic Johnson, Paula Abdul as well as the late Princess Diana and Elizabeth Taylor used their platforms to elevate understanding and compassion.<\/p>\n

Unfortunately, stigma, lack of education, and hate speech around HIV\/AIDS continues to fuel fear. After Easy-E, the iconic front man of N.W.A. died in 1995 from HIV-related health complications it became clear that HIV and AIDS impacted everyone- not just white gay men. Forced to address the impact HIV\/AIDS has, particularly on the Black community, artists and emcees reckoned with their duty to use the powerful political potency of hip hop to shift mainstream conversations about the pandemic. The 1996 collaborative album America is Dying Slowly centered Black male youth and featured acts such as Common, Wu-Tang Clan, Goodie Mob, Spice 1, Mobb Deep, and De La Soul. These artists affirmed the influence and power of musicians to shift public opinion and intervene in a global health crisis.\u00a0Read More<\/strong><\/a><\/p>\n

A Culture of Shame:<\/h3>\n

People living with HIV now live full lifespans, but the media has failed to create dynamic characterizations that transcend one-dimensional victimhood, or criminality. Black and Latinx communities not only make up a significant portion of HIV cases in the United States, they continue to suffer rampant criminalization.<\/p>\n

The CDC says state laws against people living with HIV, many created in the early days of the epidemic when far less was known about the virus and before treatments were developed, are now outdated. State laws criminalizing HIV exposure do not reflect current research and advancements to prevent HIV transmission.\u00a0Read More<\/strong><\/a><\/p>\n

Media Case Study: HIV Criminalization, Misinformation, and Race:<\/h3>\n

In Missouri in 2013, Michael L. Johnson, a young Black man, was arrested for allegedly failing to report to a white male sexual partner that he was living with HIV before engaging in condomless sex. In 2015, he was originally sentenced to thirty years in prison for \u201creckless transmission of HIV– a sentence longer than almost any other crime in the state including the state\u2019s average for second degree murder. The nexus of HIV stigma and the prison industrial complex continue to disproportionately impact Black gay men. According to the Centers for Disease Control, if current rates continue: 1 in 2 Black gay men who have sex with men will contract HIV in their lifetimes[4].\u00a0Read More<\/strong><\/a><\/p>\n

Stigma in the Deep South:<\/h3>\n

In an expansive review of the literature, a particular emphasis was placed on HIV-related stigma where it is the most prevalent, in states that also have limited HIV coverage across the Deep South including Alabama, Georgia, Louisiana, Mississippi, South Carolina, and parts of Tennessee.<\/p>\n

In the void of accurate information about HIV and AIDS, too many people believe the lie that HIV is still a death sentence. In addition, many in the South still fear that HIV and AIDS is something that can be \u201ccaught\u201d by the simple gesture of touch, leading folks to fear that coming in contact with someone who has the virus could lead to a death sentence. Combined with lack of universal healthcare, widespread poverty, and few opportunities for rapid HIV tests, a significant portion of new HIV cases continue to emerge from the South.\u00a0Read More<\/strong><\/a><\/p>\n

Acknowledgements:<\/h3>\n

GLAAD is the world\u2019s largest LGBTQ media advocacy organization. GLAAD rewrites the script for LGBTQ acceptance. As a dynamic media force, GLAAD tackles tough issues to shape the narrative and provoke dialogue that leads to cultural change. GLAAD protects all that has been accomplished and creates a world where everyone can live the life they love.\u00a0Read More<\/strong><\/a><\/p>\n

\n

Download the full publication in PDF format.<\/strong><\/a><\/p>\n

View the PDF<\/a><\/p>\n

To view last year\u2019s 2020 State of HIV Stigma Study click here<\/a>.<\/p>\n<\/div>\n

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References<\/div>\n
    \n
  1. \n

    Baugher, Amy R.a; Whiteman, Aria,b; Jeffries, William L. IVa; Finlayson, Teresaa; Lewis, Rashundaa; Wejnert, Cypriana; for the NHBS Study Group Black men who have sex with men living in states with HIV criminalization laws report high stigma, 23 U.S. cities, 2017, AIDS: August 1, 2021 – Volume 35 – Issue 10 – p 1637-1645 doi:10.1097\/QAD.0000000000002917<\/p>\n<\/li>\n

  2. \n

    Brodie, M., Hamel, L., Deane, C., & Dijulio, B. (n.d.).\u00a0HIV\/AIDS at 30: A Public Opinion Perspective | KFF. Retrieved July 18, 2021, fromhttps:\/\/www.kff.org\/hivaids\/report\/hivaids-at-30-a-public-opinion-perspective\/<\/p>\n<\/li>\n

  3. \n

    Crenshaw K. Mapping the margins: intersectionality, identity politics, and violence against women of color. Stanford Law Rev 1991; 43:1241\u20131299<\/p>\n<\/li>\n

  4. \n

    Center for Disease Control.\u00a0CROI_lifetime_risk_msm_race_ethnicity.jpg (2194\u00d7803). (n.d.). Retrieved July 19, 2021, fromhttps:\/\/www.cdc.gov\/nchhstp\/newsroom\/images\/2016\/CROI_lifetime_risk_msm_race_ethnicity.jpg<\/p>\n<\/li>\n

  5. \n

    Center for Disease Control. CROI_lifetime_risk_state.jpg (1906\u00d71572). (n.d.). Retrieved July 19, 2021, fromhttps:\/\/www.cdc.gov\/nchhstp\/newsroom\/images\/2016\/CROI_lifetime_risk_state.jpg<\/p>\n<\/li>\n

  6. \n

    Epidemiology of HIV in the USA: epidemic burden, inequities, contexts, and responses\u2014The Lancet. (n.d.). Retrieved July 16, 2021, fromhttps:\/\/www.thelancet.com\/journals\/lancet\/article\/PIIS0140-6736(21)00395-0\/fulltext?rss=yes<\/p>\n<\/li>\n

  7. \n

    Geter, A., Herron, A. R., & Sutton, M. Y. (2018). HIV-Related Stigma by Healthcare Providers in the United States: A Systematic Review.\u00a0AIDS Patient Care and STDs,\u00a032(10), 418\u2013424.https:\/\/doi.org\/10.1089\/apc.2018.0114<\/p>\n<\/li>\n

  8. \n

    Haire, B. (2020). Benefit of HIV molecular surveillance is unclear, but risks to prevention norms are clear.\u00a0The American Journal of Bioethics,\u00a020(10), 47-49.<\/p>\n<\/li>\n

  9. \n

    HIV Stigma and Discrimination. (n.d.). 17.<\/p>\n<\/li>\n

  10. \n

    Johnson Case Fact Sheet 092117_0.pdf. (n.d.). Retrieved July 27, 2021, fromhttps:\/\/www.hivlawandpolicy.org\/sites\/default\/files\/Johnson%20Case%20Fact%20Sheet%20092117_0.pdf<\/p>\n<\/li>\n

  11. \n

    Kaiser Family Foundation. (2009).\u00a02009 Survey of Americans on HIV\/AIDS: Summary of Findings on the Domestic Epidemic\u00a0.\u00a0https:\/\/www.kff.org\/wp-content\/uploads\/2013\/01\/7889.pdf.<\/p>\n<\/li>\n

  12. \n

    —Apr 30, P. & 2003. (2003, May 1). National Survey of Adolescents and Young Adults: Sexual Health Knowledge, Attitudes and Experiences.\u00a0KFF.https:\/\/www.kff.org\/hivaids\/report\/national-survey-of-adolescents-and-young-adults\/<\/p>\n<\/li>\n

  13. \n

    —National-survey-of-adolescents-and-young-adults.pdf. (n.d.). Retrieved July 18, 2021, fromhttps:\/\/www.kff.org\/wp-content\/uploads\/2013\/01\/national-survey-of-adolescents-and-young-adults.pdf<\/p>\n<\/li>\n

  14. \n

    —-.2017-KFF-National-Survey-of-Young-Adults-on-HIVAIDS_Report.pdf. (n.d.). Retrieved July 16, 2021, fromhttps:\/\/www.greaterthan.org\/wp-content\/uploads\/2018\/04\/2017-KFF-National-Survey-of-Young-Adults-on-HIVAIDS_Report.pdf<\/p>\n<\/li>\n

  15. \n

    —-Key-facts-african-americans-and-hiv-aids-pdf. (n.d.). Retrieved July 18, 2021, fromhttps:\/\/www.kff.org\/wp-content\/uploads\/2013\/01\/key-facts-african-americans-and-hiv-aids-pdf.pdf<\/p>\n<\/li>\n

  16. \n

    Lightner, J. S., Rajabiun, S., Cabral, H. J., Flaherty, J., Shank, J., & Brooks, R. (2021). Associations of internalized and anticipated HIV stigma with returning to work for persons living with HIV.\u00a0PLOS ONE,\u00a016(6), e0252783.https:\/\/doi.org\/10.1371\/journal.pone.0252783<\/p>\n<\/li>\n

  17. \n

    Mahajan, A. P., Sayles, J. N., Patel, V. A., Remien, R. H., Ortiz, D., Szekeres, G., & Coates, T. J. (2008). Stigma in the HIV\/AIDS epidemic: A review of the literature and recommendations for the way forward.\u00a0AIDS (London, England),\u00a022(Suppl 2), S67\u2013S79.https:\/\/doi.org\/10.1097\/01.aids.0000327438.13291.62<\/p>\n<\/li>\n

  18. \n

    Rawlings, M. K., & Parham-Hopson, D. (2021). HIV in the South. In B. O. Ojikutu & V. E. Stone (Eds.),\u00a0HIV in US Communities of Color\u00a0(pp. 135\u2013146). Springer International Publishing.https:\/\/doi.org\/10.1007\/978-3-030-48744-7_8<\/p>\n<\/li>\n

  19. \n

    Reif S, Wilson E, McAllaster C (2018) Perceptions and Impact of HIV Stigma among High Risk Populations in the US Deep South. J HIV AIDS 4(2): dx.doi.org\/10.16966\/2380-5536.154<\/p>\n<\/li>\n

  20. \n

    Richardson, M. B. (2020).\u00a0Racial, Gender, and Sexual Imagery and the Black Queer Man.\u00a01, 9.<\/p>\n<\/li>\n

  21. \n

    Stigma in the HIV\/AIDS epidemic: A review of the literature and recommendations for the way forward\u2014PubMed. (n.d.). Retrieved July 18, 2021, fromhttps:\/\/pubmed.ncbi.nlm.nih.gov\/18641472\/<\/p>\n<\/li>\n

  22. \n

    Where We Are on TV Report\u20142020. (2021, January 8). GLAAD.\/whereweareontv20<\/p>\n<\/li>\n

  23. \n

    Yigit, I., Bayramoglu, Y., Weiser, S. D., Johnson, M. O., Mugavero, M. J., Turan, J. M., & Turan, B. (2020). Changes in Internalized Stigma and HIV Health Outcomes in Individuals New to HIV Care: The Mediating Roles of Depression and Treatment Self-Efficacy.\u00a0AIDS Patient Care and STDs,\u00a034(11), 491\u2013497.https:\/\/doi.org\/10.1089\/apc.2020.0114<\/p>\n<\/li>\n<\/ol>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

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